How to submit a proposal

In order to receive raw data from the PROFILES registry, researchers are requested to submit a short research proposal. This proposal:


  • Can be submitted by email to, data manager of PROFILES
  • Must be written in English
  • Is typically between two and five pages long
  • Must contain name, address, affiliation and short CV with main publications of the researcher(s)
  • Must contain research questions and a scientific motivation
  • Must specify the content of the questions
  • Must be checked for overlap in topics and questions with the existing PROFILES publications
  • Must be specific about requested patient population, number of measurements (where applicable), needed variables etc.